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CHADD, CDC Celebrate Grand Opening of National Resource Center on AD/HD

FAMILIES, PROVIDERS,
RESEARCHERS, POLICY MAKERS, EDUCATORS AND THE PUBLIC GAIN
NEW NATIONAL RESOURCE CENTER

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CHADD, CDC Celebrate Grand Opening of
National Resource Center on AD/HD

For Immediate Release
May 20, 2003

Note to Reporters:  To speak directly with a CHADD spokesperson, please contact Peg Nichols or Winnie Imperio (301-306-7070, ext. 102 or 117).

Landover, MD -- Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) today officially opened the doors of its National Resource Center (NRC) on AD/HD, the country's first and only national clearinghouse dedicated to the evidence-based science and treatment of AD/HD.

CHADD CEO Clarke Ross, CHADD President Evelyn Green, and CDC/NCBDDD Dep. Dir. Barbara Holloway officially open the National Resource Center on AD/HD.The NRC is a collaborative program with the U.S. Centers for Disease Control and Prevention (CDC) and CHADD, the nation's leading advocacy organization serving individuals with AD/HD.

"Establishment of the National Resource Center on AD/HD represents a major milestone in recognizing the challenges faced by individuals living with the disorder," said E. Clarke Ross, Chief Executive Officer of CHADD. "CHADD, its members, and the millions of others affected by AD/HD are pleased that the federal government's leading public health agency has declared AD/HD a serious public health issue warranting a national clearinghouse for obtaining and disseminating science-based research and information about the disorder."

Barbara Holloway, M.P.H., Deputy Director of the National Center on Birth Defects and Developmental Disabilities, which directly funded the National Resource Center, provided further insights on the significance of the Center's opening. "On behalf of the National Center on Birth Defects and Developmental Disabilities at the CDC, we are pleased to welcome CHADD to the family of CDC-supported national resource centers for persons with disabilities. Ensuring public access to accurate and valid information about evidence-based interventions is vital -- something that the CHADD NRC can and will provide to millions in need of this critical information."

The other disability resource centers named by the CDC as national clearinghouses within the past six years are: The Christopher and Dana Reeve Paralysis Resource Center, The National Limb Loss Information Center, and The National Center on Physical Activity and Disability.

Visionary Awards were presented at the opening ceremony to Sen. Tom Harkin (D-IA), Rep. Steny Hoyer (D-MD), and Rep. David Obey (D-WI) for their outstanding commitment and effort in securing the resources and Congressional support for this critical endeavor.

"Current estimates indicate that as many as 7 percent of school-age children have AD/HD and more than two-thirds of these children will continue to experience symptoms through adulthood," stated Hoyer. The CHADD National Resource Center will provide critical support to those living with AD/HD and will provide health professionals with a better understanding of this challenging disorder."

BACKGROUND

The National Resource Center on AD/HD is a proactive response to the CDC's 1999 Public Health Perspective Conference, which called for the development of: (1) a resource for both professionals and the public regarding what is known about the epidemiology of AD/HD, and (2) an avenue for the dissemination of accurate and valid information and materials related to the diagnosis of AD/HD and the availability of evidence-based interventions. According to the May 2002 CDC Vital and Health Statistics report, there are 1.623 million children with AD/HD (approximately 7%), ages 6-11.

In August 2002, CDC awarded CHADD $750,000 to establish and operate a national clearinghouse to disseminate science-based information on AD/HD. The Center is now fully staffed with healthcare experts, including specially trained information specialists who respond to public inquiries in English and Spanish via the National Resource Center (NRC) website, http://www.help4adhd.org, and the toll-free number (800-233-4050). In addition, the NRC is building a comprehensive library of books, reports, scholarly journals, and more. Recognizing that AD/HD is a lifespan disorder, the NRC, in collaboration with the Attention Deficit Disorder Association (ADDA), is also preparing new fact sheets on a wide variety of topics affecting adults with AD/HD for distribution in early June.

The federal award is supplemented by a library grant from Celltech Pharmaceuticals, which has funded CHADD's information and referral service for the previous four years.

Since its inception, CHADD has worked to improve the lives of people affected by AD/HD through collaborative leadership, advocacy, research, education and support: CHADD CARES. Establishment of the National Resource Center on AD/HD will allow for further expansion and dissemination of such materials. The NRC will allow CHADD to maintain its role as a family support membership organization, while simultaneously creating new initiatives and free information clearinghouse services that benefit families, providers, policy makers, educators, researchers and the general public.

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For additional information about AD/HD or CHADD, please contact the National Resource Center at 800-233-4050, or visit the CHADD website at www.chadd.org.

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